The following is a guest blog post authored by a Pierce County mom:
Colton was the kid everyone looked at in public. At 24
months, he still couldn't speak. Colton would yell, scream, hit, kick, and bite
his message across. He hated the smell of strong foods – they made him gag or
vomit. He hated anything on his hands and would scream until we wiped them, but
he hated the wet wipes as well and would scream even more. Good luck getting
anything off his face without a wrestling match! His face was off limits: no
wiping, no touching, not even a kiss goodnight.
Colton was constantly on the move. Jumping here and
there, crashing into things. We had him evaluated for Autism Spectrum Disorder, but that was ruled out.
We knew he had a speech delay and a sensory processing
disorder. I was an exhausted mom. I was a frustrated mom. It's hard to
admit, but I was also a mom who was embarrassed by his behavior.
One of the
biggest blessings of Children's Therapy Center Early Intervention program was
having someone explain why our son was acting like this and giving us the
encouragement and knowledge to support him.
Picture Exchange Communication example. |
I was surprised when his first therapist was a special
education teacher, considering he had been referred for speech. But Stephanie was exactly what Colton needed. He couldn't practice speech until we helped him
regulate himself. She taught us how to parent him with love and logic. She
taught him sign language (“more,” “all done,” “help,” and “please”) so that he
could request his needs. She gave us PECS (Picture Exchange Communication
System) so that meals, snacks, and activities were no longer a guessing game
ending in fights and tears. She saw his body and knew a SPIO® would help
him gain control. She was right! He was like a different kid with it on.
Stephanie saw that music helped him learn and calm himself, and she utilized
it. She led a play group where he flourished and was motivated by his peers.
Within 6 months, Colton went from speaking four to 60 words. He began tolerating
wiping.
The first person my son ever blew a kiss to was Stephanie. I think that's a bold expression of the amazing staff that CTC employs.
The amazing, Colton! |
Colton’s speech therapist, Alyssa, had participated in
his playgroup and I think this familiarity made a huge difference. Her
enthusiasm really drew Colton in. Alyssa was great at taking Stephanie's
observations and utilizing games and songs to get him to enunciate. She showed
us how to break words apart, target sounds, and practice repetition in positive
ways.
Colton also received occupational therapy with Marge.
Marge really took the time to understand Colton. She observed his reactions
and the environmental input and explained all of this to me in a way I could
understand. She helped us see how his lack of speech was causing his aggressive
behavior. Marge helped us make daily struggles (teeth brushing, hair washing,
eating, bedtime) into tolerable and fun routines. She also noticed his weak
muscles (hypotonia) and how they negatively impacted the simplest tasks. She
taught us how to help him gain strength utilizing household items and games.
I was extremely nervous knowing that Colton would be leaving Early Intervention. All of his therapists and teachers were unconditionally supportive. They worked with me to review notes, prep for the evaluations, and calm any fears I had. With their help, we were able to get Colton the support he needs for the future via developmental preschool.
Colton doesn't need to yell, scream, hit, kick, or bite to
get his messages across anymore. He can use one of the 120 words he now has in
his vocabulary. Colton can play with clay or paint with his sisters and wipe
his hands calmly. Colton is still on the move but he is not crashing into
things. He has much better control over his body and his emotions.
Every night
now, I can tuck him in and give him a kiss – something that would never have
been possible without Early Intervention and his teacher and therapists at
CTC.
For more information about Early Support for Infants and Toddlers in Washington State, go to www.del.wa.gov/ESIT.
For more information about Early Support for Infants and Toddlers in Washington State, go to www.del.wa.gov/ESIT.
4 comments:
This was really great to read, I can easily relate! Quick question, what's a SPIO?
this story is amazing, I an a true v\believer that early intervention works and have a tremendous impact in families and children lives. I have been working with children and families for the past 30 years and have seen and heard great success stories from parents and providers.
An SPIO is used by children and adults with disabilities. Here is the website for the SPIO that was referenced in the post: http://www.spioworks.com/.
For Colton, the SPIO gives him a steady deep pressure. Similar to a compression garment. This pressure helps him organize his movement, and have a much calmer body. When Colton wears his SPIO, his unsafe behavior of crashing/jumping/banging is dramatically reduced because this sensory need is addressed. He also seems to have greater tolerance of other sensory input. Colton still wears a SPIO. He enjoys it, and request his "super suit" every morning.
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